The Advance Practice Provider (APP) provides family centered care in an expanded role that incorporates comprehensive assessment skills, diagnostic ability, critical thinking, independent decision making, collaborative management of health and illness problems, leadership within complex systems, and the ability to critically analyze and translate research findings into practice. The APP works collaboratively to empower children and their families to make informed decisions regarding their health care, including health promotion, prevention of disease or complications, and attainment of a peaceful death, when applicable.